Hawaii Chapter - NHF
Phone 808-284-7417

Our Mission

The National Hemophilia Foundation (NHF) Hawaii Chapter is dedicated to finding cures for inheritable blood disorders and addressing and preventing complications of these disorders through research, education, and advocacy enabling people and families to thrive.  

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FOR IMMEDIATE RELEASE   

MEDIA CONTACT                                                                            

Ilana Ostrin   

Senior Director of Public Relations and Communications  

iostrin@hemophilia.org

212-328-3769 

Aug. 28, 2022

BioMarin recently shared findings from a phase 3 clinical trial (GENEr8-1) evaluating the presence of vector DNA in patients two years after they received a single dose of valoctocogene roxaparvovec, the company’s investigational hemophilia A gene therapy.

Novo Nordisk recently announced that the U.S.

As investigational hemophilia gene therapies move closer to regulatory authorization, community stakeholders have recognized the acute need for people with hemophilia (PWH) and healthcare professionals (HCPs) to be fully engaged in shared decision making (SDM).

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Hawaii Chapter - NHF
75-5660 Kopiko Street, Suite C7 #294
Kailua-Kona, HI 96740
Phone 808-284-7417

© Hawaii Chapter Hemophilia Foundation 2022

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