Our Mission
The National Bleeding Disorders Foundation (NBDF) Hawaii Chapter is dedicated to finding cures for inheritable blood disorders and addressing and preventing complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Our Mission ... In Action
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Giving you education & support for you and your family is our top priority. Our programs will help you connect with others, give you important information on care, and gain support.
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We fight to protect access to quality healthcare and treatments we need to live healthy lives, but we can't do it without your voice. Discover how you and your family can make a big difference by joining our advocacy efforts.
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We provide year-round events and fundraisers to spread awareness, educate and generate crucial resources in support of our mission. We hope to see you at our next event!
News Articles
At the Bleeding Disorders Conference, a pioneering session led by Dawn Rotellini of the National Bleeding Disorders Foundation put women's health in the spotlight. The panel introduced a game-changing concept: WGPPM (Women, Girls, and People with Potential to Menstruate), signaling a shift towards more inclusive care.
At the recent Bleeding Disorders Conference, an interactive pre-conference session on von Willebrand Disease (VWD) offered attendees a tantalizing look into the future of treatment and care. The session, sponsored by CSL Behring and led by Lena Volland, brought together experts, patients, and innovators to discuss groundbreaking initiatives and technologies.
Parents of children with complex medical needs gathered to share their experiences and strategies for managing stress. The session focused on three primary challenges: lack of control, suddenness, and ambiguity.
"It's like trying to catch lightning in a bottle," one mother said, describing her attempts to maintain control in unpredictable situations. From unexpected ER visits to navigating school accommodations, these parents face daily challenges that test their resilience.
In a groundbreaking session at the recent Bleeding Disorders Conference, Dr. Karen Zimowski unveiled the latest advancements in treating inherited bleeding disorders, signaling a new era of personalized care.
Gone are the days of one-size-fits-all approaches. Today's treatment landscape is as diverse as the patients it serves. From traditional factor replacement therapies to cutting-edge gene therapy, options abound. "It's not just about stopping bleeds anymore," Dr. Zimowski explained. "It's about preventing them and improving overall quality of life."