Hawaii Chapter - NHF
Phone 808-284-7417

Community Voices in Research

 

 

NHF’s Community Voices in Research (formerly MyBDC) connects the experiences of people with bleeding disorders and their family members to researchers investigating improving treatments and care.

How does it work?

As a participant in NHF’s Community Voices in Research (CVR), you complete surveys about your experiences living with a bleeding disorder. Researchers seeking to better understand specific aspects of living with a bleeding disorder may submit targeted surveys that you can choose to complete. Surveys through research studies offer compensation for completion. All information will be reported in a de-identified, aggregate manner to protect your privacy. Your personal identified information will never be sold or shared. For more information, please read the CVR privacy policy.

 

 

Resource Links

Hawaii Chapter - NHF
75-5660 Kopiko Street, Suite C7 #294
Kailua-Kona, HI 96740
Phone 808-284-7417

© Hawaii Chapter Hemophilia Foundation 2022

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