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Event Calendar

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2020

WEBINAR - Legislative Advocacy - How to tell your story

Saturday, January 25, 2020
6:30 pm8:00 pm
Personal PC or Mobile device
WEBINAR - Legislative Advocacy - How to tell your story

Join us for a live interactive virtual program that offers you and your family members or caregivers the opportunity to:
• Deepen your understanding of Legislative Advocacy
• Learn how to tell your story
• Prepare for Legislative day Feb. 10th, 2020 or local visits opportunities in your district.
• Discover valuable resources, tools, and support
• Hear from a patient advocate about their personal experience with legislative advocacy
• Gain valuable information and support from others in the hemophilia community through the live Q&A session

Ohana Education Dinner -Oahu (Genentech)

Wednesday, February 5, 2020
6:00 pm8:30 pm
TBA

Educational Dinner (Genentech) Oahu
This will be an interactive session where you learn how our bodies form blood clots, see what happens inside the body and learn about scientific exploration...

Ohana Education Dinner -Maui (Genentech)

Thursday, February 6, 2020
6:00 pm8:00 pm
Maui Beach Hotel

Educational Dinner (Genentech) in collaboration with HTC Clinic-Maui
This will be an interactive session where you learn how our bodies form blood clots, see what happens inside the body and learn about scientific exploration.

Future Leaders/Ambassadors Traning 2020

Saturday, February 8, 202010:00 amSunday, February 9, 20206:00 pm
Hilton Beach Hotel - Waikiki
Future Leaders/Ambassadors Traning 2020

This will be an advocacy based educational event for Teens/Young Adults 14-21 in preparation for Legislative day on 2/10 with the ohana and local visits in their own districts with their ohana.
REGISTRATION OPENS DECEMBER 15th, 2019.

Ohana Advocacy Education Dinner

Sunday, February 9, 2020
6:30 pm9:00 pm
Hawaii State Capitol Building
Ohana Advocacy Education Dinner

Join us for a a chance to tell your story and engage with your legislative representatives that make YOUR Healthcare Law decisions.
ONCE you are registered, you will be sent travel information.
PLEASE also register for Legislative Day Feb 11th.
REGISTRATION OPENS 12/15/2019

Legislative Day 2020

Monday, February 10, 2020
8:00 am3:00 pm
Hawaii State Capitol Building
Legislative Day 2020

Join us for a a chance to tell your story and engage with your legislative representatives that make YOUR Healthcare Law decisions.
ONCE registered a travel link will be sent to you to arrange travel.
PLEASE also register for Ohana Education Dinner on Feb. 10th.
REGISTRATION OPEND DECEMBER 15th, 2019

Hawaii Proclamation Ceremony

Friday, February 14, 2020
9:30 am10:00 am
Capitol Building - Governors Ceremonial Room

Hawaii State Proclamation - Presentation Ceremony by Governor Ige to the Hawaii Bleeding Disorder Community declaring March as Bleeding Disorders Awareness month on the 4th floor of the State Capitol Building in the Governor's Ceremonial room.

Ohana Education Weekend 2020

Friday, March 27, 20207:00 pmSunday, March 29, 202012:00 pm
Hilton Beach Hotel - Honolulu
Everyone attending must register, regardless of age...This registration is for all OHANA . ONCE registered a travel link will be sent to you to arrange travel. DEADLINE if Travel is required - February 21st, 2020 MAHALO!!
Ohana Education Weekend 2020

Everyone attending must register, regardless of age...Attendees will have the opportunity to learn and hear from our NHF and industry educators, treatments, resources and services for the bleeding disorders community. Connect with the other community members to talk story. Programming will include youth and teen programming, as well as basic education on Hemophilia and von Willebrands for adults.
DEADLINE if Travel is required - February 21st, 2020 MAHALO!!