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Explore the science behind gene therapy research...
RSVP Deadline to receive $25 Dinner Gift card prior to virtual education is 08/09/2020.
Register in advance for this meeting -
Registration LINK: https://bit.ly/VirEdDnrAugust13
After registering, you will receive a confirmation email containing specific link to join, password and information about joining the meeting.
Virtual-Camp Koko Ohana 2020
With the Spike in COVID and safety our top concern, we have adjusted to a VIRTUAL camp program for Camp Koko Ohana 2020. Program will be from 6:00-8:00pm Friday 8/28 and 9am till Noon on Saturday 8/29. We will send Camp boxes to your residence with program activities. Program is designed for families w/bleeding disorders and thier houshold.
1 ticket per person registering seperately - EACH person (even the Keiki) must register seperately in system so we have an accurate count of supplies being sent. Deadline to receive Camp Box PRIOR to camp - AUGUST 18th. May still register and attend after that date, Items just not guaranteed prior to camp.
Hawaii Teen Summit 2020
Join us on the North Shore of Oahu. We will spend the week relaxing at the camp as well as introduce you to various teen transition topics that will enhance not inly your value in the community but society. Personal Advocacy, Hikes, Personal growth, Swimming, Budget and Scholarships are only a few of the topics and fun to be had by all!
Program is designed for Teens 13-19yo w/bleeding disorders, carriers and/or immediate siblings in the same household.
The Hawaii Chapter of the National Hemophilia Foundation is excited to host an Annual Health Policy Summit/Stakeholder meeting Friday, October 23th, 2020. We are inviting other patient advocacy organizations, health care providers, and key bleeding disorder stakeholders/community members who can share their experience with healthcare policy issues in Hawaii. The purpose of the Summit is to identify, discuss, and prioritize public policy issues that impact access to healthcare in our state.
Hawaii UNITE for Bleeding Disorders Walk
The UNITE for bleeding disorders Walk is an annual fundraiser on October 24th, to help raise valuable funds for programming as well as spread awareness about Bleeding Disorders to the local/Public community. All registrations are done through the Hawaii UNITE walk registration "link" provided below.
Oahu Walk - Magic Island Park
Big Is. - TBD
Maui - TBD
Kauai - TBD
Molokai - TBD
Lanai - TBD
4th Annual Hawaii Golf Tournament
We will be hosting our 4th Annual Golf Classic on NEW DATE of December 7th, 2020 at the picturesque Hokuli’a, a private course in Kona. The Charity Golf Tournament is one of our largest fundraiser of the year and our main source of revenue for the programs and services we provide to the bleeding disorders community. Funds raised from this event help us:
--Financial Aid program for our Ohana
--Bring Families with bleeding disorders to Family Camp – Koko Ohana and young adults to Hawaii Teen Summit
--Deliver educational outreach programming